General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsHello from Desert Grandma
Dear friends, I have not been here much since my post back in February regarding my beloved husband of 51 years, (who was also a strong Democrat and veteran,) that was hospitalized due to an uncommon side effect of the immunotherapy he had undergone due to a squamous cell carcinoma (skin cancer) that is usually totally curable. Had we been able to get in to see the Mohs surgeon sooner, he would most likely still be here. Apparently the Mohs surgery allowed a few cells to escape and start growing about 2 inches below the original site. By the time we were finally able to get back in to see the surgeon that did the surgery, it was too late to have anything but a very disfiguring facial surgical procedure done. Hence the recommendation was an immunotherapy called Libtayo which is very successful with this skin cancer, but does have an uncommon side effect that affects kidney function. The treatment is very high doses of steroids, tapering down over a period of weeks. He was at the VA hospital from Feb 2 until March 11. His kidney function had normalized by early March and I wanted him to experience physical, occupational, and speech therapy so that he could return home. My daughter and I spoke with him on the 11th, and he was moved later that day to a rehab hospital that was equipped to continue his medical needs. Unfortunately, he was unresponsive upon arrival at the rehab hospital, although his vitals were ok. The doctor at the rehab ordered a CT scan which they did on site and found he was experiencing an active brain bleed. He was rushed to the Trauma level 1 hospital neurological ICU unit at UNM hospital. Despite some hopeful signs, he never regained full consciousness and passed in the evening of March 15. I had been staying at the ICU unit with him and was by his side when he no longer had a pulse. My husband was the love of my life and it has been so difficult without his kind, loving presence here with me. I am having a specialized neurological autopsy done which will hopefully show exactly what cased the brain bleed and hopefully exactly when it began. I was advised by the ME that this would take some time to determine but they would do their best to provide the information.
I have been too devastated to do much at all since then, because there is a lot to do for life insurance and other legal and financial paperwork. I am so grateful to all of my DU friends that responded when I first posted about our situation back in February. I wanted to let all of you that were kind enough to respond to my post back then know the outcome, and that I am still here and appreciate my DU family now more than ever.
With deep gratitude,
Desert Grandma
Solly Mack
(97,278 posts)question everything
(52,429 posts)When all the legal activities are behind you, I hope that you can take comfort in cherished memories.
Please come back.
Easterncedar
(6,489 posts)Be sure to take care of yourself as much as you can. Conserve your strength and spirit. Holding you in my thoughts.
Irish_Dem
(82,423 posts)The first year is the hardest.
It gets better after that.
Nittersing
(8,515 posts)I just read back through some of your journal... what a roller coaster you've been on.
(((big hugs)))
SheltieLover
(81,794 posts)Please be gentle with yourself as you grieve.
City Lights
(26,043 posts)livetohike
(24,437 posts)My sympathy to you and family and all who knew and loved your husband. May you find comfort and peace in your memories.
MustLoveBeagles
(17,364 posts)Please take care of yourself.
a kennedy
(36,375 posts)My favorite brother and only sister died of melanoma, the worst kind. I feel your pain. Please, please, please, take care of yourself, and know we are all here for you to help you get through it all.
🙏🏻
marble falls
(72,576 posts)LoisB
(13,514 posts)him with open arms.
MerryBlooms
(12,411 posts)I'm a member of the same awful club. I lost my beloved in 2002 to cancer. We would be retiring now and... sigh
Find comfort and rest when you can. We love you.
Grim Chieftain
(2,075 posts)Please know your DU family is always here for you. Don't hesitate to reach out anytime.
Hugs and healing vibes to you, friend.
senseandsensibility
(25,560 posts)It's hard to imagine your loss but I'm glad you're feeling up to posting on DU.
mgardener
(2,412 posts)malaise
(298,114 posts)You have had a rough time.
Mourn - In time the good memories will replace your pain.
1WorldHope
(2,164 posts)I'm sorry you lost your life partner too. The last 1/3 of life is not a picnic. I wish it was more like a fairy tale. Take care of yourself and thank you for sharing your story. 💜 Talk soon!
chowder66
(12,533 posts)I hope all of the wonderful memories and time spent together will give you great comfort.
Deuxcents
(27,746 posts)cate94
(3,127 posts)Clouds Passing
(8,208 posts)Your husband
Aristus
(72,545 posts)irisblue
(37,951 posts)70sEraVet
(5,635 posts)I'm glad that you are reaching out for your friends here in your grief. Its important to keep your friends and family close.
blm
(114,768 posts)💐🕯️💐
cachukis
(4,087 posts)OldBaldy1701E
(11,588 posts)DarthDem
(5,467 posts)I'm so sorry for your loss. Peace to you and all that mourn your husband. May his memory be a blessing and RIP.
HeartsCanHope
(1,765 posts)I will be thinking of you. I'm sending you hugs, and much love and light.
mountain grammy
(29,238 posts)Permanut
(8,585 posts)51 years - wow!
We get reminders about how fragile we are, and reminders about treasuring the moments we have. All rhe best to you.
Dear_Prudence
(1,196 posts)To compose an update on such a tragic outcome. You were there with him to give him love and strength while he lived. My sympathy for your loss.
LuckyCharms
(23,137 posts)MLAA
(19,807 posts)Im a desert dweller as well and my wonderful husband passed back in October. Send me a dm if you want to talk or message, Ive had a 7 month head start. ❤️
Cha
(320,770 posts)Desert Grandma. 💔💙 ☮️
area51
(12,760 posts)IzzaNuDay
(1,349 posts)Hugs too!
alwaysinasnit
(5,654 posts)KitFox
(597 posts)endured so much. Please know how much support you have from this special DU family. As you are navigating getting through the day, getting through the night, reach out and keep us posted. Take special care of yourself and try to get restorative sleep whenever and however you can. We care so much. Love and gentle hugs to you dear heart. 🩷🩷🩷
calimary
(90,857 posts)Glad youre back with us again, and thanks for the detailed update.
Im sorry for how it had to end. Seems like a bunch of us here have had a bumpy road to travel, lately.
But Im mighty glad you (and they, also) are here, since it really does feel like a second family. Please do keep us updated, when you can.
Heres a hug (((((( * )))))) !
hamsterjill
(17,774 posts)Thanks for letting us know. Goodness, you've been through a horrible ordeal. I couldn't begin to understand, but I offer my utmost sympathies on the loss of your beloved husband.
I appreciate the information on the skin cancer treatment as that runs in my genetics. I always appreciate being informed by personal experience, but I am so sorry that your outcome was loss.
I hope you are navigating all of the details as best you can. I hope you have help, and I hope you will take all the time you need to heal and process the grief.
DU will be here when you're ready.
electric_blue68
(27,369 posts)And all the the things you have to do, go through.
Good luck, hope you have people in person to help you!
..from a happily Spring greened-up city girl who's visited, and loves the high desert.
Figarosmom
(13,507 posts)I'm so sorry. Skin cancer is very dangerous because of reactions to treatment many times. My mom had a melanoma died from a massive infection from the removal. Her brother also died of skin cancer. You'll be ok learning to live life without him. It's not easy, but the love stays in our hearts and help us go on.
live love laugh
(16,498 posts)barbtries
(31,357 posts)Big hugs. We'll be here as always.
sinkingfeeling
(58,068 posts)EuterpeThelo
(441 posts)I am so, so sorry for your tragic loss. My heart hurts for you so very deeply.
(IYour post stopped me in my tracks, actually. My dad passed from squamous cell in the mid-aughts, and my mama five years ago this week from glioblastoma that led to a brain bleed - the latter just a year after my life partner of two decades passed from COVID. So please know how much I understand on so many terrible levels.)
They haven't invented the words to assuage this much pain, so I will just say that this community is holding you in our hearts. Please be gentle with yourself. Sending you so much love and light.
FakeNoose
(42,472 posts)Are there children or other family members close by who can help you get through this? It would be wonderful if a few friends and family members step forward to take some of the burden off your shoulders.
In any case, thank you for sharing this sad news with your friends at DU. Condolences to you and your loves ones.
MacKasey
(1,537 posts)May the light of the holy Spirit surround you with love
UpInArms
(55,409 posts)My virtual arms are around you
(((((Hugs)))))
Passages
(4,528 posts)Grief is powerful; may his memory give you strength.
Trueblue Texan
(4,617 posts)...and for all the trauma you and your family have been through. It will be a while before you can even process all you've been through and I hope you are surrounded by a loving supportive group of people. Please take care of yourself and allow yourself to process and heal and know that you have a supportive community here. Peace and healing, Desert Grandma.
CrispyQ
(41,113 posts)Ocelot II
(131,280 posts)Such a shocking loss and such a struggle for both of you. I hope you get some answers, at least, and maybe find a little peace. I don't know what else to say except that I'm sorry.
Mz Pip
(28,515 posts)My condolences to you and your family.
Richluu
(162 posts)I understand! I lost my husband 3 years ago. Fortunately I have church friends and work there. Service to others got me through my loss. 47 years with my love.
I also finished a remodeling project that we started together, and added a few more flourishes of my own--bay windows.
Now you have to rebuild (figuratively perhaps literally). We all support you!!!
people
(849 posts)Good that you could be with him when he passed, after so many years of love and support. This is certainly a hard, sad time. Thinking of you and your family.
yellow dahlia
(6,525 posts)Thank you for sharing your story.
51 years is something special.
CaptainTruth
(8,263 posts)IbogaProject
(6,086 posts)I offer my condolences. Be mindful to take care of yourself as it can take months if not a year to get to a new stability.
Nevilledog
(55,142 posts)Sending you healing vibes.