Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Moostache

(10,619 posts)
22. That describes my father in a nutshell...
Thu Jun 19, 2025, 03:20 PM
Jun 19

He has dementia (diagnosed) and is in terminal decline at 82 years old. He seems to be fine at the beginning of any exchange or conversation, but within a few minutes he begins to lose the plot and begins repeating himself. Asking the same question 3, 4, 5 times in a 10 minute stretch, getting stuck on one detail and losing the ability to focus on other details.

If things persist for too long, he begins to get nervous and shifts his weight a lot (as if sitting is becoming painful) and gets a confused appearance and demeanor, sometimes agitation and anger join the party too. I have learned to adapt to him as best I can and communicate in short, declarative sentences and nothing more than a 3 or 4 sentence story / update. Sundowning is also VERY real and VERY confusing for him. He has a terrible time during the evening hours and also with his sleep patterns - often getting into patterns where he tries to go to sleep at 3PM and is wide awake and wandering his facility at 3 AM.

Its heart breaking and deveastating to live through and watch while being powerless to help. Over the last 5 years, my dad has lost my mother (his wife of 53 years), his home (after a stroke left him remarkably intact but unable to be left alone and we had him move 5 hours closer to my sister and I), his independence (when we had no choice but to take his car keys as he was no loner able to drive safely at all), his continence (which was robbed from him by bladder cancer and advancing issues elsewhere) and his mobility (when a fall resulted in a broken hip). Through it all, he has been remarkably resilient and physically recovered from all of it prior to the hip injury. That ended his mobility for good at this point.

Since last summer, he has been fading more rapidly and retreating deeper into the haze of dementia more and more. I visit him twice a week and he doesn't remember the weekday visit by Saturday or the weekend visit by the next week. He has forgotten his grandchildren's names and ages and is receeding deeper by the week. Watching all of this is eerily similar to what happened with my grandmother (his mother) a decade ago. She too had dementia and she lasted 17 years in a care facility and had no idea who any of us were by the 7th year there. By the end, she did not know my dad, her name, where she was, how long she had been there...nothing, just a blank slate. Her decline began around age 80. My dad's issues truthfully began at least a decade ago, but he had my mom until 2020 to cover for him and guide him and remind him of things. Since her passing, he has been adrift in every way imaginable.

All of this weighs on me daily like a ton of bricks. I have started a ghoulish countdown in my own head of the 26 years I MAY have left of good cognition and a reason to keep living. I won't make it that far and I know it. I have health maladies that don't presage a lifespan into the mid-80s or beyond, and given what I have witnessed and seen and lived through twice now, I don't want those years anyway. The humiliation and degradation that my father's eyes reflect every time he can't remember something or is in need of toilet care breaks me and leaves me wishing for no part of this dreaded family tradition.

This past father's day, I became the oldest thing remaining in my dad's life. He was 27 when he lost his father (in 1970, 6 weeks before I was born), a husband for 53 years (until 2020) and my father since 1971 - now 54 years ago. I cherish the time we had, but I mourn his slow, irreversible decline and losing him a piece at a time now hating myself for finding excuses to stay away from his facility at times because I am too weak to take it again. When I was younger I used to fear dying too young, now that I am older I fear living too long. It sucks. The only thing that makes it at all bearable is when I can bring up a memory that he still has command of and the light that comes back on however briefly...I just wish I was better at that than I am.

Recommendations

9 members have recommended this reply (displayed in chronological order):

I noticed the same thing with my MIL before she passed. pandr32 Jun 19 #1
The orange person you are referring to is a chatbot. usonian Jun 19 #2
Fascinating...thanks!! Recommended. PCIntern Jun 19 #3
"We're looking into that." "I'll have something in about 2 weeks." Liberal In Texas Jun 19 #4
they're terrible ppl. rly bad ppl. like you've never seen b4. etc. etc. mopinko Jun 19 #25
He has about a dozen stock phrases he uses over and over. bif Jun 19 #36
Like you've never seen before! BidenRocks Jun 19 #38
"I'm looking into that strongly." Ilsa Jun 20 #43
Or "we'll see what happens." boonecreek Jun 20 #51
This probably deserves an independent post. NNadir Jun 19 #7
You should do an OP with this, usonian! ❤️ littlemissmartypants Jun 19 #9
I did! 😇 April 30. usonian Jun 19 #16
The GC version... littlemissmartypants Jun 19 #17
Most informative, usonian! THANKS!!! calimary Jun 19 #14
Is this an OP somewhere? It should be! Beartracks Jun 19 #19
See my post above #16 usonian Jun 19 #23
His no basis in reality DENVERPOPS Jun 19 #29
This is the best explanation of his speech I've seen. It summarizes him perfectly ms liberty Jun 19 #40
You might be interested in this old article, if you haven't already seen it: eppur_se_muova Jun 20 #46
You would'nt even need a ChatDJT Danascot Jun 20 #47
I don't agree that it would discredit him in their eyes ms liberty Jun 20 #49
This has always been Trump, tho. Self Esteem Jun 20 #52
Same for my grandmother godsentme Jun 19 #5
Same with my husband's stepmother. ShazzieB Jun 19 #21
After a severe stroke my wife was like that. skydive forever Jun 19 #6
Interesting. Language full of form but void of content. littlemissmartypants Jun 19 #8
Is "Colorless green thoughts sleep fiercely" familiar ? eppur_se_muova Jun 20 #44
I have read so much Noam Chomsky he could be my grandmother. littlemissmartypants Jun 20 #45
This is where my wife is right now. Magoo48 Jun 19 #10
I'm sorry to hear that. NNadir Jun 19 #11
She's still at home with me; I'm the caretaker-in-chief. I will care for her until I can't. Magoo48 Jun 19 #15
I'm very impressed with the depth of your love. It reminds me... NNadir Jun 19 #24
Thank you for being the human being and spouse that you are. yellow dahlia Jun 19 #33
you are a good man onethatcares Jun 20 #53
My you both know peace and good health. Magoo48 Jun 20 #60
Strength for your journey. I am sorry to hear this. LoisB Jun 19 #26
I'm so sorry. area51 Jun 19 #41
That syndrome is known as "sundowning". Totally Tunsie Jun 19 #12
LOL DENVERPOPS Jun 19 #30
Very good and thanks... PCIntern Jun 19 #31
Yes, looking back, of course you did. Totally Tunsie Jun 19 #32
I used to joke about my dad, when his dementia was taking over bif Jun 19 #35
My MIL Does That, Too Deep State Witch Jun 19 #13
Hugs to all who are undergoing this. usonian Jun 19 #18
whenever I hear the same stories Skittles Jun 19 #20
That describes my father in a nutshell... Moostache Jun 19 #22
Such powerful and personal stories told by you and others. Thank you for sharing. erronis Jun 19 #27
I've seen this progression with several family members and acquaintances. Totally Tunsie Jun 19 #28
Big Diff, Doctor. Kid Berwyn Jun 19 #34
You nailed it! Totally Tunsie Jun 19 #37
I did not in any way attempt PCIntern Jun 20 #54
My Communication Skills Devolving with Age, too. Kid Berwyn Jun 20 #55
You are right about that. PCIntern Jun 20 #56
Many years ago I witnessed something very similar WestMichRad Jun 19 #39
My sister got dementia fairly early. Fiddlelady11 Jun 20 #42
You know who defeated chat box? CTyankee Jun 20 #48
Read "Jan's Story" by Barry Peterson twodogsbarking Jun 20 #50
If she were President gfarber Jun 20 #57
Yep. jeffreyi Jun 20 #58
At least she still has words. barbtries Jun 20 #59
Latest Discussions»General Discussion»So this is not uninterest...»Reply #22